News To Use

What Should FDA Know about PAH?

Encourage your patients to join a rare conversation with FDA drug reviewers about living with PAH and the impact of current treatments on daily life.

• Tuesday May 13, 2014

• 1:00–5:00 p.m. EST

• 10903 New Hampshire Avenue Silver Spring, MD 20993 (FDA Campus)

In-person attendance is encouraged, but webcast participation is available. PHA will provide buses from our New York and Maryland offices. All members of the PHA community are welcome to attend, but FDA will focus on speaking with persons currently living with PAH. Learn more and register at www.PHAssociation.org/FDARegistration

Help Your Patients Find the Resources They Need

Help your patients take control of their PH diagnosis with PHA's free resources for patients and caregivers. These materials help patients and their families understand PH and connect with support resources. Free resources include:

• Envelope of Hope: This free kit for newly diagnosed PH patients provides information about PH, finding specialists, organizing treatment plans, and connecting with other patients. Patients can request information kits directly at: www.PHAssociation.org/EnvelopeofHope.

• Empowered Patient Online Toolkit: This toolkit helps patients create their own PH-specific medical binder with their medical appointments, medical histories, medication dosages, pharmacy numbers, insurance plans, and more. Patients can download this medical binder to bring to all medical appointments at: www.PHAssociation.org/OnlineToolkit.

• Coping with PH Guides: This series of downloadable coping guides for newly diagnosed patients, long-term survivors, parents, caregivers, and teens address the emotional, social, and spiritual components of living with PH. www.PHAssociation.org/Coping

PHA's History of PH Series

The recordings of PHA's History of Pulmonary Hypertension two-part webinar series are now available online. Presenters include:

• David Badesch, MD, University of Colorado, Denver

• Bruce Brundage, MD, St. Charles Medical Center - Bend

• C. Gregory Elliott, MD, Intermountain Medical Center

• Michael McGoon, MD, Mayo Clinic

• Stephen Mathai, MD, MHS, Johns Hopkins University School of Medicine

• Stuart Rich, MD, University of Chicago

• Lewis Rubin, MD, University of California, San Diego, Thornton Hospital

You can view the webinars at www.phassociation.org/HistoryOfPHMechanismsAndPhysiology and www.phassociation.org/HistoryOfPHProgressInClinicalManagement.